Research Questions

  1. Do participants understand informed consent forms in the same way researchers intend?

  2. Does the information on sharing data (containing vs. not containing a section on data being shared) in the informed consent influence the participants’ willingness to participate? (for different data types?)

  3. Does the option to clarify concerns about the informed consent make a difference in the willingness to participate?

Study 1

  • Design: 2x2 between-subjects design with randomized conditions
  • Factors: Consent with different
    • reading level (standard vs. easy-to-read)
    • interactivity (display-only vs. quiz-format).
  • Measures:
    • Dwell time
    • Self-reported reading engagement
    • Understanding (via multiple-choice)

Study 2

  • Design: 2x3 between-subjects design with randomized conditions:
  • Factors:
    • Data-sharing section (included vs. not included)
    • data collection format (video recording vs. interview vs. survey)
  • Measure: Willingness to participate (6-point Likert scale)

Study 3

  • Design: Within-subject design with consent for a fictitious video study
  • Procedure:
    • Initial Response: Participants indicate willingness to participate (6-point Likert scale)
    • “No” Response: Provide primary reason (open-ended)
    • “Yes” Response: Describe a scenario for not signing consent
    • Additional Measures: Perceptions of being well-informed and trust in research
    • Feedback: Written feedback from an LLM addressing participant concerns
    • Participants asked again about willingness to participate (6-point Likert scale), feeling informed, and trust

Thank you



Jürgen Schneider

References

Credit

Title page: Aziz Acharki on Unsplash

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