Fear of lower participation due to data-sharing clauses,
particularly with certain data types (e.g., video data) Challenge for data sharing practices
Would participants actually agree less?
Does participants’ understanding align with that of the researchers?
Design of consent
More general challenge: Evidence that participants often don’t read/understand consent forms
Evidence so far:
Comprehension varies with reading level, interactivity
Dialogue about data sharing increases consent may be challenging with larger sample size option for automated response?
Research Questions
Do participants understand informed consent forms in the same way researchers intend?
Does the information on sharing data (containing vs. not containing a section on data being shared) in the informed consent influence the participants’ willingness to participate? (for different data types?)
Does the option to clarify concerns about the informed consent make a difference in the willingness to participate?
Study 1
Design: 2x2 between-subjects design with randomized conditions
Factors: Consent with different
reading level (standard vs. easy-to-read)
interactivity (display-only vs. quiz-format).
Measures:
Dwell time
Self-reported reading engagement
Understanding (via multiple-choice)
Study 2
Design: 2x3 between-subjects design with randomized conditions:
Factors:
Data-sharing section (included vs. not included)
data collection format (video recording vs. interview vs. survey)
Measure: Willingness to participate (6-point Likert scale)
Study 3
Design: Within-subject design with consent for a fictitious video study
Procedure:
Initial Response: Participants indicate willingness to participate (6-point Likert scale)
“No” Response: Provide primary reason (open-ended)
“Yes” Response: Describe a scenario for not signing consent
Additional Measures: Perceptions of being well-informed and trust in research
Feedback: Written feedback from an LLM addressing participant concerns
Participants asked again about willingness to participate (6-point Likert scale), feeling informed, and trust
